A Texas mother, Kiely Branch, experienced a social media storm after sharing a picture of her eldest daughter online. As a mother of four children under five, and expecting a fifth, Branch often documents her family life on social media.
“Life in our house is definitely never boring,” Branch shared with Newsweek, illustrating the ups and downs her family experiences. This scenario is familiar to many parents who engage in “sharenting.” In fact, a 2021 survey from Security.org indicated that 77 percent of U.S. parents share photos or stories about their children online.
However, Branch’s TikTok post featuring her 4-year-old took a different turn when users began urging her to seek medical advice based on her daughter’s appearance. Initially, Branch noted that the post did not receive much attention. “The views were extremely low, and I even considered deleting it one night,” she admitted. Yet by the next morning, the post had attracted significant interest.
“I had no idea why until I started reading the comments,” she stated. Users were advising Branch to have her daughter checked for a genetic condition due to her eyebrows.
Many commenters speculated about a condition known as Sanfilippo syndrome. This rare inherited disorder disrupts the breakdown of certain sugars, leading to progressive damage in the brain and nervous system. Symptoms can include developmental delays, speech difficulties, and behavioral issues. Additionally, some children might have physical features like prominent eyebrows and a broad forehead.
Branch was surprised by these reactions. “Her eyebrows aren’t unusual in our family,” she explained, referencing their genetic trait of thick, full eyebrows. Despite this, Branch delved deeper into understanding Sanfilippo syndrome. Her daughter showed none of the other associated symptoms or developmental concerns.
“My daughter doesn’t have the issues people were assuming she had,” Branch confirmed. Her daughter showed no signs of developmental delays or other medical concerns. “She’s never had an ear infection, doesn’t have GI issues, sleeps extremely well, and we’ve never had concerns raised by her pediatrician or other medical professionals,” Branch mentioned.
The phenomenon of being told about her daughter’s health over TikTok was a peculiar experience. “Imagine walking into a pediatrician’s office saying TikTok diagnosed my daughter based on photos,” Branch said. As aggressive comments implied neglect, frustration grew.
She reflected on the situation: “It has been really interesting, and sometimes hilarious, watching the internet try to figure out a child they’ve never met from two photographs.”
