Lila Grace from Denver, Colorado, first confronted a scoliosis diagnosis at age 12. At a routine checkup, doctors identified scoliosis and kyphosis, conditions causing abnormal spinal curvature. Her spinal curve initially measured 30 degrees, above the scoliosis diagnostic threshold of 10 degrees. Rapid progression of the curve alarmed doctors.
Grace recalled, “We kept an eye on it for a bit, but eventually the curve got up to about 70 degrees.” Due to her age and the curve’s nature, bracing was not suitable.
Doctors warned her of grave consequences without prompt intervention. They advised immediate action to prevent crippling effects. At 15, Grace prepared for spinal fusion surgery, which doctors described as “the number one most painful surgery.” This procedure corrects severe curves by permanently joining vertebrae using metal rods, screws, and bone grafts to encourage stability.
Despite the anticipated pain, Grace felt a mix of excitement and nervousness. Chronic pain had plagued her since the diagnosis, and she eagerly awaited relief. Yet, she harbored fears of paralysis post-surgery.
She shared, “My biggest fear was paralysis. It’s a small percentage that experiences it, but I was terrified.” Grace concealed much of her anxiety to spare her family further worry. Only on her way to surgery did she exhibit emotion, supported by her doctor’s comforting presence.
Recovery posed challenges beyond the physical. Grace faced two months bedridden, relearning basic functions like walking. Her mother provided crucial assistance during this period.
Mentally, reliance on others for daily tasks burdened Grace. “To rely on those around me for medication, getting out of bed, changing, showering was extremely rough for me mentally,” Grace admitted.
Reflectively, Grace expressed no regrets about her choice to undergo surgery. While she still experiences chronic pain, its severity decreased post-surgery, providing reassurance of a stable condition.
Grace posted old video footage on TikTok (@learningbeinglila) for personal reasons, honoring her late grandmother featured in the clips. She also aimed to inspire others facing similar conditions, including her middle school students.
Her key advice for those fearing spinal fusion surgery emphasizes the power of mindset. “Mindset is everything,” she noted. “Encourage yourself however you can, and don’t be afraid to lean on those around you—both literally and metaphorically.”